My name is Jane and I am hoping to meet in here some people that are in the same kind of condition I am in or simular...

Sometimes I lay in bed and feel like I am the only one in the world in bed and everyone else is out there working, having fun or just going shopping...

It started 8 years ago with the doctors telling me I had Myofacial Pain in both of my legs and feet. That I could deal with... I still could get around, go to work, cook, clean and have fun with my husband. At the time we had a 16 year old in High School giving us nothing but problems which was a daily chore...

Three years later I began to feel this terible feeling in my Colon area... Come to find out the doctors told me that the Myofacial Pain had traveled and wrapped itself around my colon making it unbarible to sit down, stand up and sometimes even lay down... There was no position left where I was comfortable..

I tried every pain pill in the book and nothing worked.. I then proceded to have every test done known to man and they could find nothing wrong.. The only test I couldn't get done was an MRI because I have an VNS Machine Implant in my chest for Epilepsy.

For the month of June I was getting Ketamine Shots once a week... They seemed to help in small ways but after the 4th shot the doctor at the Pain Clinic at UC Davis decided it was time to stop because they wern't working like he had hoped they would... He then scheduled a MRI to be done on the 11th of August, had everything all set up where I would go in FEET FIRST because of the VNS Machine so we left everything in his hands... (BIG MISTAKE)

On the 11th I was all ready to go, my husband came home from work to drive me there and the phone rang. It was UC Davis telling me that I couldn't get the MRI that I was scheduled for because I had a VNS Machine in my chest!!!! First I asked them why are you calling me 5 minutes before I am walking out the door and second, The head of the Pain Clinic set this all up with the MRI Dept. You had better call him and find out whats going on... I got a call back telling me to go to a different place and get what they call a "HIGH RESOLUTION CAT SCAN".. I did what they told me to do and came home as fast as possible... No Consideration from anyone for the pain your in.

I was not pleased as you can imagine... After all these years I finally thought I was on my way to getting the one test that I had been told that i couldn't get... Finally maybe I was going to have not only an answer but maybe be fixed 40% so i can get some things done around the house or maybe, just maybe go back to work... All my dreams were taken away with a phone call...

Has anyone ever gone though this before??? If so I would love to hear from you...

My husband has been great but I am sure after all these years he would love to talk about something else... Wouldn't you???

I look forward to hearing from you hearing your stories as well...