| 5 years ago :: Sep 04, 2008 - 10:19AM #41 | |
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Last night I went back to the hospital and had a good, long talk with my cousin. It was quiet, her family had left and we had time.
She is like me in that we have both been caregivers for other people who have had cancer. Now she is like me and has crossed over into this other nation where she has cancer. The difference is stark. She was feeling lonely and pretty scared. The last days have been a busy round of tests, surgery, diagnosis, treatment options and financial worries. Last night after the hub bub died down it hit her. She has cancer. There is no way to explain what that means unless we sit and have our doctor tell us those words. I give honor and love to all the people who have supported me in this fight. I love them all. They have given me much. Yet, they go home at night. They watch TV, make meals, play with their kids, grandkids, cats, dogs, birds and frogs. They can forget about cancer. I can't. It stays with me 24/7. I can not think about it. I can live my life fully and richly. But, always, in all ways, cancer is part of ME. I am never going to go back to the life I had. I will always and forever see life from a different perspective. I know that lurking in my body is a gremlin that can kill me and will do so one day. I DON'T dwell on this. I really don't. I live here and now, in this moment, in this place. I live fiercely, with passion. My whole being goes into my life. Yet, I know I have cancer. I am part of a different tribe now. I live in a new neighborhood. I have learned my way around here. I know the streets, the houses, the landscape. I know how to get around to the shoe store, the grocery store and the hardware store. I know where the coffee shop it. I can't say I am comfortable here but I am familiar with the scenery. That gives me a little bit of distance with the immediacy of having cancer but it doesn't change the fact that I do live with it every day. Ellie is just starting to explore the neighborhood. She and I will probably be living on different streets. We'll decorate differently, drive different cars and go to different churches. But we are neighbors here. I am trying to show her around. It helps to talk to other people who are living this and have lived it. It gives up hope but it's more than that. When I talk to cancer patients and cancer survivors I know they have been where I am standing. They do know how this feels. They have faced waking up in the middle of the night in a cold sweat. They have walked the floors at 2 a.m. They have burst into tears for no reason or any reason. They have had to stare in the mirror at the new chemo hairdo. They understand when I talk about it. THAT is so comforting and so wonderful to have. Bless you Frankie. You have helped me get my life back. It's a life with cancer in it but well, it is MY life and while I can never go back to the old me I can sure learn how to love, honor and care for this me. I am making chicken soup today. It's raining and chilly here. It's a good day for soup, books, cats and the smell of soup permeating the house. |
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| 5 years ago :: Sep 04, 2008 - 5:50PM #42 | |
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((((Itty))))
You cousin Elllie is very blessed to have you to encourage her. I'm sorry about the news. You're so right about the "living in a different neighborhood" now. Folks who haven't had cancer can't go there. They can see it through their loved ones who do have it, but they can't go there with us. That chicken soup smells great, but I'd love some of those pancakes with the peach jam!!!! Maybe later, we can put on some Jimmy Buffett and go to the islands! |
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| 5 years ago :: Sep 04, 2008 - 9:14PM #43 | |
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The soup was good and the pancakes and jam are on that special cyberstove. They are ready when you are.
Did I hear you say Jimmy Buffet and the Islands? Oh yeah sister. I am on it! itty scampers off to the jukebox. Soon the strains of "cheeseburger in Paradise" fill the air in the Saloon. It drifts down the street....Jimmhy Buffet is one of my favorite singers. Now can I remember where I put the song about the bear? I dunno....Gonna hafta look. |
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| 5 years ago :: Sep 04, 2008 - 9:14PM #44 | |
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The soup was good and the pancakes and jam are on that special cyberstove. They are ready when you are.
Did I hear you say Jimmy Buffet and the Islands? Oh yeah sister. I am on it! itty scampers off to the jukebox. Soon the strains of "cheeseburger in Paradise" fill the air in the Saloon. It drifts down the street....Jimmhy Buffet is one of my favorite singers. Now can I remember where I put the song about the bear? I dunno....Gonna hafta look. |
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| 5 years ago :: Sep 07, 2008 - 1:32AM #45 | |
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Hello every one. Hay I seen the Adnocystic word...I have it in my mouth, my jaw, god only knows were alse. I was told that I had to have the left side of my face removed. There was a 75% chance I wouldn't make it through the operation. I chose not to get it done. They gave me 18 months to life. That was 3 years ago. I moved out of state to get better treatment. Wich so fair, I'm still lookin. At this point I know I will not be cured. Just hoppin to buy some time.
I needed this site so badly. Makin such a hudge move, i'm freindless & feelin so very alone. My 17 year doughter is to. We have each other, thank god above. Still, I don't want to way her down any more then she has to be. She quit school to work full time to saport the both of us. Walfair just isn't enough. Neathor is ssi. I thank god for her every day. Out of 6 children she's the only one willing to go through this with me. Losing all she knew to do it. Yea alot of well disurved gilt there. So now u've hurd me boo hoo. Being alive after what the docs have said I can say stay the course. Don't give up. Miricals happen. Thank u for being hear for me. |
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| 5 years ago :: Sep 07, 2008 - 12:01PM #46 | |
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Timber good to have you here. I hope to see you come into the Saloon on a regular basis.
This is a strange new landscape for all of us. The one thing we all have is hope. Hope for today and hope for tomorrow. Others wiser than me have said that we don't have to bow to the inevitable. We are alive here and now. Cancer may eventually kill us but it can't take our lives away from us. It really can't. We choose what we need to do to live every day. I am sorry for all the upset and turmoil in your life. I am happy that your daughter is such a rock for you! She sounds like a wonderful young woman. It is such a blessing to have strong and caring people who will hold our hands as we walk in this weird landscape that is cancer. You aren't alone, Timber. There are so many of us who are making a journey like yours. I will suggest that you get in touch with the Cancer Society in your area. You can find out where they are on line at the Cancer Society. Here is a link to get you to them in your area: http://www.cancer.org/docroot/com/com_0.asp They have so many resources for us, Timber. Everything from eating healthy to different sources of financial help to finding on line support groups to setting up transportation for people who don't have it or can't drive and so very much more. I understand the issue of money. I lost my job and my health insurance through this. The Cancer Society and my local department of human services have both helped me there. They have been gods sent. There are resources for your daughter too. Hey, I know it's cyberspace but well I find that playing here is pretty important to me. Sooooo....come on it....sit down....have your beverage of choice....grab a bite to eat and find a song on the jukebox.... You are obviously a strong person. You have beat this for three years! You can do this...you are an inspiration to other people just starting this journey...I hope you will share with all of us about your triumphs. Hope is something we can share. Bless you, itty/Jo |
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| 5 years ago :: Sep 16, 2008 - 11:03AM #47 | |
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Timber,
Itty offers a lot of great advice!! It's good to see you here, and to know that you are benefiting from our group. I'm a 12 year survivor of stage 3 breast cancer. So far, doing well. The saloon is a place where we can just relax and let our hair down. Like today, I would love a Pena Colada with extra rum and a large plate of Cajun boiled shrimp. Of course, I'll share my shrimp, but beware the Cayenne!!! I like 'em hot!!! There's always the Cheeseburger in Paradise, if you want something milder. Itty, I love Buffett!!! I've got about 10 of his CD's, and a couple of his books. So if you're a fan, tell me this: What do the wino and I know??? |
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| 5 years ago :: Sep 18, 2008 - 10:53AM #48 | |
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Sierra,
Welcome to our little corner of Beliefnet! Thank you for sharing your journey with us. I can totally relate to having to be the "strong one". My kids were both in their 20's when I was diagnosed, but they really took it hard. My ex husband (we were married at the time) totally fell apart and spent most of his time smoking pot with his friend. As soon as my surgeon released me, I went back to driving a truck with the ex. I would come home on Thursdays, 3 week intervals, have chemo on Fridays, do the laundry and stuff on Saturday, then back out on the road on Sunday. I realize now how totally stupid I was. But now, I laugh at the experience. I tell the young punks who think that they are so tough, that they should try being a bald woman in a truck stop. THAT'S tough!!!! So now I'm a 12 year survivor, stage 3 breast cancer, and I'm still kickin' ass and takin' names. But I stop to enjoy life now. So what flavor ice cream do you like? We have tons of all flavors here, just name your poison! (just kidding! We've dealt with the poison, now we need the nurturing foods!) |
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| 5 years ago :: Sep 19, 2008 - 1:01PM #49 | |
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So here's some major chocolate brownie marshmallow with chunks of chocolate ice cream for Sierra! One thing I truly hated during chemo is that it changed the taste of chocolate for me. I used to live on it, now I don't really like it much.
Any particular music for the day? I think a little bluesy jazz is on the menu. Maybe some BB King or Ray Charles. |
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| 5 years ago :: Sep 21, 2008 - 3:58PM #50 | |
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Frankie I think that song fits truck drivers as well. Think about it. It is, at times a wild occupation that gets us in strange situations. We sure do live life like a song.
I can empathize with being a bald woman in a truck stop. I can imagine the reactions, the questions, the stares and the comments- in the truck stop and on the CB. You are a very tough woman! This is some strange country we live in. Sierra you aren't the only one that teared up. I did too. I can feel what you said. I have had moments like the ones you described. I burst into tears at the oddest moments and over the strangest things. I have a little Diva of a cat. Sassafras is a tabby with orange threaded through her fur. She is my baby. One morning she leaped onto my lap and started to purr. I started bawling. Here was my little Diva doing what a cat does. She knows I am her mom and she is my cat. She knows we snuggle and we play together. She is mine and I am hers. She doesn't give two hoots about my strange chemo haircut. She could care less if I get grumpy. She sleeps with me when I am tired. She just knows that I am hers, she is mine and all is well with our world when we are together being mom and cat. I cried my eyes out and soaked her fur. She didn't care about that either. Please come on back. It's good to be able to share this journey with other people who are survivors. Its good to share with other people who have loved ones coping with cancer. We can share our ups, downs and in betweens. I find myself getting angry at my family because they are well and I am not. I know it's irrational but I feel that way. I am mad because they will live longer than I will. They will get to do things that I will miss. I get furious over that. I do my best not to take that anger out on them but sometimes it does happen. All I can do is apoligize and explain. Sometimes they get it and sometimes they don't. I think I shall have a big shot of Hennesy and listen to the jukebox. Frankie, bluesy jazz is just the ticket today. |
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