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5 years ago  ::  Jul 22, 2008 - 9:49PM #11
itty
Posts: 2,949
Thanks Frankie, it's a good reminder. I had a bad day. Got over the pity party and am back after that swamp. Those alligators had better go hide! I am not normally so down in the dumps. It happens though. Thank you for your kindness. You are becoming a friend. I like thatl :)

I had an interesting end of the week. I always thought appendics are not supposed to grow back. Mine did. At least the surgeon said it did.  I told him I wan't supposed to have one. He told me it had decided that I did and he showed it to me on the MRI. Could of knocked me over with a feather. So it came out again and I hope it's the last time.

I went to a family reunion on Sunday. Wasn't moving too fast but I got there. (If one has to have surgery then laproscopy is a very good thing in my book. )
I had a real blast. I saw people I hadn't seen since I was a kid.   Had some fun remembering the hell we all used to raise. My Aunt Leela did NOT appreciate the outhouse showing up in the front yard.Oh, no she did not.   Yes, she had one. Most of my family still had them in the eary to mid-60's. We were very rural and rural water and sewer were many years away. Aunt Leela had a flying come apart!  Thankfully there were too many of us at the 'scene of the crime' to pin it on any of us.

We all laughed until we cried over that one. It turns out not one of us ratted anyone else out. I think we were all too scared of our Aunt Leela. Didn't matter that we all outgrew her (she was A tiny woman) she commanded our respect to the day she passed away. I loved that woman but "I" wasn't gonna tell her who did it. :)

Oh, yeah we told some stories alright.

I am not going to let cancer keep me from living. It might kill me but there is time in between to have a good life. I am still learning to cope. I feel so blessed most of the time. I have a good life. I have a rich life. I have people who care for me and that I care for passionately. I have time to really do some of the things I always wanted to and never could find time for. I never went to family reunions. Always figured I'd see everyone on my own time. I don't think I'll miss another. They are too much fun.

Eh, let's get this place rocking.  I feel like some good old fashioned rock and roll. I think I'll start it with Beetles , followed by Canned Heat and finish up with a little bit of of Creedance.

Oh, yeah Dusty Springfield! Can't forget my girl, Janice, either.

"Bobby flagged a diesel down just before it rained,
Rode us all the way to New Orleans,
Windshield wipers slapping time,
Holding Bobbie's hand in mine,
We sang every song that driver knew.
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5 years ago  ::  Jul 24, 2008 - 6:45PM #12
taofornow
Posts: 721
Ok, I'll jump in.  You two had me with the beignets, Dusty, and Janis. :cool:

I just found out about my C-parasites last week, and I'm scheduled for surgery next week.  My interlopers are in my uterus, so it could be an easy, self-contained thing, or it could not.  Guess I'll find out when it's out and under the microscope.  Except for a few horrible temper tantrums, I think I'm coping ok so far, possibly because I am a natural procrastinator and I can even put off worrying.  Also, one of my ways to cope is to refuse to say "I have _____," but to refer to it as something that is in me but not part of me, and that my doctor is the bouncer who will evict the SOB.  Don't know how long I can keep that fantasy going, but it's working for now.

Itty, your comment [FONT=Arial]Most all of the time i'm upbeat. I am positive. I am ready to clear that swamp and arm wrestle the alligators. Hell, most days I go alligator hunting with the aim of making boots! made me remember a sign I saw years ago that I always liked:  When you are up to your ass in alligators, it is difficult to remember that your initial objective was to drain the swamp.
[/FONT]
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5 years ago  ::  Jul 25, 2008 - 11:32AM #13
itty
Posts: 2,949
Tao, I am praying for you. I saw your message on another board.  I can relate very well to the temper tantrums. Mine can be monumental!

I am going to pray for easy. I like that visualization, Tao. I find it helpful to see GBM as a package that is being killed by the magic pills that I take. When I was doing radiation the big 'ole X-Ray was my best friend. :) I even named him - Bowser. :)

Fantasy? Maybe. I know that no sceintific study supports a known correlation between the mind and healing.Yet, I have seen what a positive attitude can do. At my cancer center. People who came in with an upbeat attitude did much better in responding to and tolerating treatment than did the people who weren't positive. I met one man who also had GBM. He had a smile on his face and was a practical joker. He has been living with the disease for five years now. It gives me hope.  I  really do think the mind and attitude has a large affect on how we tolerate the treatment and heal.  Using that rage to fuel the determination not to get beaten goes a long way too. At least I think so.

Regardless the outcome here do take Frankies message to heart. We aren't done living regardless of what ails us. There is a blessing in every day. Never give up and NEVER stop dancing!

LOL...You nailed where I got the comment. It's one of my favorites. Has been for years. It reminds me, today, that clearing the swamp is important and those damned alligators are in my way. Not very PC, of course, but I have never been a PC sort of person.

Beignets? Alrighty, lets do that.  If you have a favorite song, or a joke, let 'er rip!  I have a real fondness for cafe au lait. NOT the sickly sweet stuff but the real stuff! You'll find it on the bar.

Itty scampers off in search of beignets! She fires up the big 'ole Freightliner that she can drive in cyberspace. The deisel roars to life. Gotta get those beignets. Good thing this old gal is a triple digit truck. Look out world, Itty is one her way. Next stop New Orleans! Want to ride along? You can pick the music.
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5 years ago  ::  Jul 26, 2008 - 12:44AM #14
taofornow
Posts: 721
Thanks for the kind words, and the invitation.  Hmm, how 'bout (a little too appropriately) Blood, Sweat, and Tears?  I have a thing for bluesy, gravelly-voiced rockers.
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5 years ago  ::  Jul 26, 2008 - 8:19PM #15
itty
Posts: 2,949
Tao you are welcome.  Blood m Sweat and Tears is a great selection. That seat over there has the latest comforts that cyberspace has to offer. Its modeled on the Cascadia. The seat belt can be adjusted so it doesn't choke you. That latch is right behind the passenger door.  Next stop, New Orleans!

Now, I wonder if we can find the Cafe Du Monde? We're intelligent women so I think that's a foregone conclusion.

Life has a strange way of teaching us what is important. Each of us 'get it' in our own way. Just remember next week I will be pulling for you. My gods are getting Theirs ears talked off!
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5 years ago  ::  Jul 27, 2008 - 11:31PM #16
frankieestep
Posts: 682
Hey Itty!  Hey Tao!!

Hey can I ride in the bunk??  Is it a conto or a flat top?  I use to have a triple digit Freightshaker.  I also drove a triple digit flat top Pete.  But I liked the KW anteater the best.  The T600.  Now, it's just the lil ole mining truck.  Itty, send me a message with your email addy and I'll see if I can send a pic of the truck.

Ok, Cafe Du Monde is on Decatur, near the Jackson Brewery.  Hell with the beignets, let's have a brew!!!
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5 years ago  ::  Jul 28, 2008 - 7:35PM #17
itty
Posts: 2,949
Its a condo, Frankie. Gots the latest gadgets too. Flat screen DTV with satellite, surround sound. You want the bunk- you got it!

I have driven a KW. I liked it but have a real affection for a freightshaker. I'd love to drive a Pete. I'll send you an addy most ticky-tic.

Brew. YES!!! Just wave me over and we're gone.
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5 years ago  ::  Jul 28, 2008 - 8:28PM #18
Sacrificialgoddess
Posts: 9,496
Hey, Itty!  You invited me to swing by, so I thought I would come and say hey!  This is a nice board.  I have to admit, it really hadn't occurred to me to swing by, but as you said, cancer affects the whole faimily.  I'll try to stop by more often.  :)
Dark Energy. It can be found in the observable Universe. Found in ratios of 75% more than any other substance. Dark Energy. It can be found in religious extremists, in cheerleaders. To come to the conclusion that Dark signifies mean and malevolent would define 75% of the Universe as an evil force. Alternatively, to think that some cheerleaders don't have razors in their snatch is to be foolishly unarmed.

-- Tori Amos
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5 years ago  ::  Jul 28, 2008 - 9:24PM #19
itty
Posts: 2,949
I am glad you did, SG. If we all put our noodles together we can help each other out. Have something to drink, hop in the top bunk and go to New Orleans. In cyber space the top bunk comes equipped with seat belts and can be ridden in safely. There's a big 'ole moon roof up there too. Great way to see the country as it slides by. :)
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5 years ago  ::  Jul 29, 2008 - 11:42AM #20
itty
Posts: 2,949
Oftentimes those of us who have cancer get very caught up in our battle. Rightly so. We are fighting for our lives. It seems like, at times, we get so caught up that we forget that when we get cancer so do our loves ones. That's true of any serious illness. Cancer is a family illness.

We aren't the only ones that have to go through the maze. Families do too. I know I've been short sighted at times. Other times I have been reminded that I am not in this alone. The support and love of my beloved ones has helped to pull me through the dark tunnel back to the light.  If I didn't have that love I would be a basket case.  I am a fighter, always will be. But, I get tired and when I lay down my fight for a bit my loved ones pick it up for me.

I've had good experiences and bad with family. A dear cousin of mine doesn't visit anymore. She doesn't know what to do, how to act, what to say. She didn't articulate that to me, her sister did. I am sad but I can't force her to spend time with me. I grieve her loss from my life and I celebrate the joy I find with others who have chosen to stay and still others who have dedided to make me a part of their lives.

I've met so many people who are touched by cancer. It simply astounds me how high the incidence of cancer is across the board. It , like any illness, is no respecter of persons, social status, financial worth, region, city or state.  It doesn't matter what we do, how well off we are, how vital our careers are. It is a great leveler.

After thinking for a while I realized that for family the bewilderment might be even greater than the one I feel.  I was and am, at times,  very bewildered, confused and more than angry. Yet, I had and do have a focus. I have had to get out my sword and fight! My loved ones can support me but I imagine it must feel very hopeless for them because while they support and cheer me on they aren't fighting directly like I am. They have to watch, for the most part. While my sister in law might want to do my chemo for me, she can't. My best friend might want to do my MRI's but that's impossible. In that respect the battle is mine.

I know some families do better than others. I think that might be because they aren't afraid to be angry and emotional about it. I have a friend in Canada. When I told her about my illness I got a most interesting email. She was roaring, raging, weeping and was very angry. You know, that actually helped me! She was biting mad! I was too. We shared that with each other and for me, it helped me get through some of those emotions. I focused that anger, channeled it and I use it to fuel this fight of mine.

Eh, I am rambling again. I think I'm trying to say that if your family has a cancer survivor in it (we are all survivors whether its five minutes, five months or fifty years) you are pretty important. You are going through the same emotions and probably have the extra burden of feeling helpless. You aren't helpless. You might not be able to fight the battle directly but just picking up the phone and chattering about the weather helps me do what I have to. You are including me, you are acknowledging me as the person I am, you are honoring me by treating me like everyone else. So many people, when they learn of a friend/loved one has cancer, can't do that. for those of you who can, thank you. From the bottom of my heart I mean that.

Picking up the pieces and figuring out how to be just a person after cancer is one of the hardest challenges I face. When the people I love treat me as just me, I can do that too.

The other thing that happens to people, I think, is that most of us don't want to talk about death much less acknowledge we are going to die. I think the grieving  needs to be an ongoing process particularily for people whose death is immanent. I've needed to talk about it. My family has to come to grips with the fact that I am going to die. They have to go on when I do. I am not a doom and gloom person. I am, however, a realist. With the particular cancer I have there is no cure.  My demise may be soon or many years from now. I have to hope for the best outcome of treatment and plan for the end. I appreciate it when my loved ones let me do that without protesting that I will be here for a long time. Maybe I will and maybe I won't.  But putting your denial in my lap isn't going to help me one little bit.

Families go through the stages of grief too. Some people get stuck in denial. Death is uncomfortable. No one wants to confront it.  I think when we can we then get to really examine what life is and can be.  That, for me, is a solitary journey for the most part. Other times I need to be listened to. I don't have the double burden that my loved ones do. I only need to planfor the time I won't be here. They haveto do that and then go on without me. Now, I am not so important tnat I am the center of all their lives. I mean they will have a missing player in the game.

Wow! I really am rambling. I'll stop now..

Tao, I have you in my heart. I hope we have you back here, in B'net's crazy cyber zoo very soon. I miss you.
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