| 10 months ago :: Aug 08, 2012 - 1:10AM #1 | |
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Anyone know of any Family support groups to help spouses understand what this is.
My wife has it and because of my stupidity and misunderstanding I am losing my wife |
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| 10 months ago :: Aug 09, 2012 - 3:42AM #2 | |
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If your wife has fibromyalgia, it isn't something easy to see--the best way I can describe it is like arthritis , but of all the connective muscles instead of your joints and bones. In a severe flair, I would take my skin off to reduce the pressure on those muscles if i could. Pain killers and muscle relaxants can help with the symptoms, and sometimes she may go into remission. Pain saps your energy and dulls your mind. Some things aren't "major" but will win you bonus points--like carrying in groceries or anything heavy up and down stairs. I'm sure you've done this, but just telling her you didn't understand what was going on, and that you tried to learn more will go a long way. Extreme temperatures can trigger attacks. this isn't about just aches and pains. Chronic pain is another stress on the body; prolonged stress can lead to clinical depression. It doesn't mean you are crazy or mentally ill; it means there is a chemical imbalance. You don't tell someone who is diabetic to cheer up when they need insulin. (If you can be fixed by seeing something funny, it wasn't depression.) I had the insane idea once to try to use pain for energy--always had plenty of one, and I knew that if I took painkiller I'd crash for hours. As this went on, I was afraid that I was having/had a stroke. I was losing vocabulary and reasoning ability. I was in what is called "Fibro fog". My brain had started shutting down anything non-essential to survive--like language. It took months to come out of it. Here's one that may sound strange--one of the things that can make a difference in both pain and mobility is eating cherries. The Native Americans used cherries for pain--doesn't matter if they are sour, sweet, frozen, or juice--she'll feel better. Any fruit or food high in anti-oxidants like sweet potatoes, blueberries, cranberries--any of the berries, the darker the better. In fact, if she likes dark chocolate, it is also high in antioxidants--and high in points for you. It doesn't need to be a big box, either. I realize this isn't a complete list, but it should improve how she feels and how she feels about you. I appreciate all the help my husband gives me, although I wish I was able to do more myself. I have spinal problems and have had fusion on the upper spine over a decade ago. I just keep reminding myself that while everything complains, a lot of people would be grateful to chanage places. A good support group can help her--on the computer, through a local group--there's a support group in my area, but I have a group here that I can attend in my pajamas. Best of luck to you--I think it will mean a lot to her how much you want to help.
"You are letting your opinion be colored by facts again."
'When I want your opinion, I'll give it to you." these are both from my father. |
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| 10 months ago :: Aug 14, 2012 - 4:08PM #3 | |
Remember that you can find a lot about Fibromyalgia online, such as WEB MD. Look it up and read about it, it will help you understand what it is all about and what it is like for those of us who have this problem. It will show your wife that you are interested in understanding how it is for her, and help you to be more senitive to how she is feeling. I've had fibromyalgia now for 15 years and still most family and friends never ask how I am doing. It is like they do not understand or care. My husband will not let me even talk about it. It's very hard to live with. Help her and you'll be helping yourself to a good marriage. Acomtha |
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| 10 months ago :: Aug 14, 2012 - 4:14PM #4 | |
Hi karbie, Have you tried lyrica? Is that how it is spelled? Anyway, it is new and is suppose to be so good for Fibromyalgia, but because of all the side effects that are listed, and because it is new, I don't feel safe taking it, so was wondering how it is working for those that do. If you have tried it is it helping you? Acomtha |
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| 10 months ago :: Aug 17, 2012 - 6:38PM #5 | |
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I was on Lyrica for over a year, but even reducing the amount I was taking didn't prevent the uncontrolled muscle spasms--my least favorite was shaking my head back and forth rapidly for a few minutes at a time. I decided that it didn't help enough for me to put up with that sort of side effects. Ssso I think you are right avoiding it--it sometimes takes awhile befor the drugs live up to the ads. I'm on Cymbalta, plus trazdone and all the usual relaxants and painkillers. In addition to fibromyalgia, I have arthritis in all of my joints, spinal stenosis, scoliocis, degerative disc disorder, and I've had fusion and a graft on my upper spine. The upper 3 disck were completely gone except for debris left on the next one down, I also had a bone spur pressing on my spinal column. With all this, I'm not the one with the most condidtions going on--my older sister has a few that I don't, and as far as I'm concerned I'm not interested in competing. What finally stope the spasms was simply praying for them to stop. I just never thought of that, but it worked. A lot of us hang out on the Depression forum at The Front Desk thread--I've got some dear friends there. We sshare ups and downs, are happy whe people find us, and these are some of the least judgemental group of people I've ever found. We rant, share how things are going, and while we suffer from depression for different reasons. This is a support group you can attend any time, even in your pajamas.
"You are letting your opinion be colored by facts again."
'When I want your opinion, I'll give it to you." these are both from my father. |
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| 9 months ago :: Sep 10, 2012 - 7:20PM #6 | |
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