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Switch to Forum Live View Welcome to the Pain Support Arena
6 years ago  ::  Mar 20, 2009 - 5:22AM #1
windwizard
Posts: 748

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Hello --- Glad you found us!


I hav been experiencing chronic pain since my auto accident in december2003.  I have learnt that no matter how small an incident may have started our walk on this painful journey, we all seem to suffer quite intense pain with very little warning before its onset.


Here in this forum we try to share our experiences, both good and bad, in hopes of helping even just one person to find a little comfort in a very painful world.


My name is Windwizard........although generally ~WIND~ is used by myself and anyone who wishes to also use the shorthand version. !  LOL


I have been a host here on the board for about two years now, and enjoy meeting new posters and of course staying in touch with all the ones who frequent here on pain support arena.  I will try to help at anytime I can with questions or to simply offer a shoulder and sit by and listen. 


Please post as often and as much as you wish, the more the better.  IMHO  Feel free to bring new  topics to the board, I do hope you not only enjoy posting here with us, but that you meet many new and interesting friends here as well!   Come in anytime 24/7 and know your always welcome.


May today be the day that you stumble upon your own tranquill river in life.........and once again Hello and welcome everyone to this compasionate and well wishing board....may you soon come to love it here as much as I do.


~`~WIND~~~  {Host }

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6 years ago  ::  Mar 22, 2009 - 2:19AM #2
karbie
Posts: 3,329

Dropping down and then off Lyrica after well over a year gave me a reality check on my mobility without help; it shocked my husband more than it shocked me. It was the main reason I was willing to put up with the side effects on Lyrica--until they told me it might be the reason all of my joints are swollen.. I got started on cymbalta on 3-19, so  I hope it will be an improvement. I ended up in bed Friday and most of today, but there's always a "fun" short period as the body chemistry adjusts. At the moment  all my bones feel like they have a toothache and that's better than yesterday was.


I'll let you know how it works; part of my willingness to switch to it was how much other people say it has helped them. I'd accept the word of anyone on this forum or the fibro because all we want to do is help each other.


Spring! Green grass, green leaves, lilacs, warmth and more sunshine...a "tonic" all of us can use!

"You are letting your opinion be colored by facts again."
'When I want your opinion, I'll give it to you."
these are both from my father.
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6 years ago  ::  Mar 25, 2009 - 12:11PM #3
windwizard
Posts: 748

Karbie


WOW  This is the first story of such upset with lyrica.  Thank you for sharing --- you know it was working wonderfully for me before I too went off of it...however for me it was the cost that made me stop.  I could not afford the 400 a month any longer.  Hearing that there are perhaps issues that one doesnt always hear about, outside of chat arenas and support groups, im so glad you brought this up for disscussion.


I am getting to the point where all medications seem to have one ill effect or another for me.  Almost as if my body is shutting down from all the medications.  Makes one wonder what the best route truly is sometimes, doesnt it.


~~WIND~~

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6 years ago  ::  Mar 27, 2009 - 9:11AM #4
Loveleeartanddesign.com
Posts: 1

Karbie, I empathize! Please don't give up, you are in my prayers, strong lady.


Blessings,


Lee

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6 years ago  ::  Apr 01, 2009 - 5:06PM #5
swinter5
Posts: 71

Hello, Wind!


I have been under the care of a Pain Specialist for over 10 years.  It sounds as if those on this blog suffer from fibromyalgia; my case is different, in that I have small tissue injury to my lower back.  It started when I met my late husband 11 years ago.  He was an amputee, and I was "stuck" with lifting his wheelchair in and out of the trunk of my car.  Because he was my "soul mate" and I loved him more than life, I never noticed what it was doing to my body.


When I went to the Pain Specialist, he started me out on coritzone injections, which ran over $1,130/each, for several months.  I didn't realize that THIS was the way he made his money (thank God for good insurance!).  I was also taking physical therapy; the first kind was kinda holistic - people chanting over you and running their hands over your "chakras."  Then, I had "pool therapy," which was VERY enjoyable, but did nothing for the pain.  In fact, my trainer said that I had reached "mobility," and no longer needed therapy...


My Pain Specialist finally put me on Morphine and Percocet for 5 years.   When my husband died suddenly, my doctor said - "He was high maintenance, and you just don't have a  high maintenance body."  How TRUE!!  It was getting so that I couldn't do ANYTHING on the morphine, and was beginning to abuse it - taking 2 pills instead of 1, and waiting out the days until my next prescription.


Suddenly - it hit me! I had read about the Fentanyl patch, and asked my Pain Specialist about it.  He thought that was the way to go, so I've been on it for about 7 months.  Although the pain is still "there," it is MUCH reduced, and I can function on it - drive, read, walk, etc.  So far, it seems to be the drug of choice for my sacroiliitis.  I'm no longer on the morphine, but take Percocet 3X day for the acute pain.


I am also on antipsychotic medications for my bipolar, so finding a narcotic that "mixes" well with  these meds has been hard.  Most of the time, I feel OK; but there are times when I feel overly drugged and like a "zombie."  My shrink just lowered one of my meds, so we'll see.


Chronic acute pain is no fun/picnic.  I'm "paying" for my relationship with my husband, but I wouldn't change a thing.  Thank God the doctor has found a medication that gives me some relief, and I can face every new day with hope.


Spring has sprung, the grass is riz - I wonder where the birdies iz!!!


Swinter5

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6 years ago  ::  Apr 03, 2009 - 5:34AM #6
Dreamweever2
Posts: 733

Hi everyone,


I wanted to stop in and say hi, and that I hope that things get better for everyone here. Anyone who has never dealt with chronic pain really doesn't understand what it is like for us, which is really a good thing. My brother fell into a pit at work, and wound up knocked out and with a concussion about a year ago. Recently, he began to have severe pain in his neck and radiating down his arm, then spent over a month sleeping in a wooden rocking chair. He couldn't lay down. When he first called and told me about it, he was desperate for help with the pain because the vicodin his doc prescribed for him did nothing but make him depressed. It broke my heart. I had my other brother that lives with me, drive me over to his house to take him my tens unit and show him how to use it. Unfortunately it didn't help either. He has since had cortisone injections, and thought they were going to let him go back to work. So far, he seems to be doing better, which I was relieved to hear. It's really good that we have a place to share and talk about what we deal with when it comes to pain. It helps not to walk through it alone, but I wish none of us knew anything about it.


Sending my prayers and well wishes to all of you 

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