It's good to hear from you! I haven't heard about this process, but the one thing that I can be sure of is that our insurance won't cover it. I've had a new symptom starting this year that I am afraid signals rheumatoid arthritis because all of my joints are visibly swollen and red--even my toes! They've been taking me down off the Lyrica because they think that there is a medicine that I can take that will improve things without the fun mini-convulsions Lyrica gave me if I took a dose less than 12 hours apart. I was willing to put up with all the crap that came along as long as it kept improving my mobility. I was told that the Lyrica might be causing the trouble with my joints. I don't think so because it is getting worse instead of better--at my age needing to crawl upstairs to reach my bedroom or the bathroom isn't very amusing.

I think the main reason we all end up with CFS is simply that the fibro makes us hurt too much to get a deep night's sleep. I tried to tell myself for a few years now that I didn't have CFS ...maybe because I thought I had enough going on with out adding everything else into the mix. I see the pain doctor on the 18th and I hope we can get some things straightened out.

I just started moving our family to different doctors--these are in the same extended group my former doctors joined, so we won't have to pay new patient fees or switch our records since they can access them by computer. One doctor pulled a double whammy--told my husband things my son had told her in confidence and spent the visit making fun of our son instead of doing a damn thing to help my husband. When I had to send my son last Monday, she told him he should learn to suck things up and go back to work. He had bronchitis and works in food service at the college. She put him on an antibiotic at least; the new doctor gave him medication for the coughs and told him he had no business coughing on other peoples food.   

Let's put it this way...I had to bring up doing a stress test last year. She thought she'd done a sleep study on me and I had a machine and that she'd sent me to a rheumatologist for my rheumatoid arthritis. I've NEVER been in that deep a fibro fog. She actually told me she'd just written my health problems off to my being just very nervous. I went to a pain doctor myself; she had nothing to do with it except write on my chart back then not to give me anything for pain because I went through it too fast. 30 Tylenol 3"S per 60 day period and I wanted more. Spinal stenosis, arthritis, degenerative disc, scoliosis, and fibromyalgia. How greedy of me to want a pill every other day. It's hard switching after 20 years, but her group is pretty burnt out. My out of state family has been begging me for years to find someone else. It's hard enough for me when I look in the mirror and see what I've become; the idea of facing someone for the first time is hard for me.   I hope that I don't get too much of a riot act for being so overweight or have someone think that my problems are something to gloss over. Maybe seeing someone who hasn't written me off will make a difference. I hope so.

Sorry for the rant--I'm just tired of having no energy, no sleep, and too much pain. I find myself wondering  what I was thinking if I actually signed up to come back here and go through this stuff. I had gotten out a scrapbook my mother had made us a few years ago so my daughter to be could see more of the family and more baby/toddler pictures of my son   so that I could hear her giggle. Having her around through the week is wonderful for all of us. time to crawl back to bed!

You sound a lot like me.  I hurt all the time now.  Nothing helps, not the Rx, not too much asprin.  I just sit home, it hurts to walk, even in the mall. The Dr shrugs it off, like I'm telling untruths.  Even a walk to the mail box is unpleasant these days. Depression is the worst, I have no interst in anything, it all hurts....  No friends to speak of, they're out having fun, I don't want to go and do, it hurts. Is there any help out there? I don't want to sit in the house alone forever and cry 'cause it hurts.