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Switch to Forum Live View Anyone with weird vision trouble, or is it just me?!?
7 years ago  ::  Mar 31, 2008 - 8:36PM #1
Ithilien
Posts: 1,597
Okay, here's my question:

Is it common for folks with FMS to have vision trouble?  I've seen some sources, but it doesn't seem to be universal, and I just want some information from *real live* people.

For three years now, with rather sudden onset, I've been having severe trouble focusing.  Things are blurry, I see ghost images just to the side of the real image, my eyes burn and hurt and are sore, and it seems like a shadow comes over them.

I've had two or three different prescriptions for corrective lenses in this time--none of them help.  I've had tests for this and tests for that.  One doc thought he saw a spot on my retina and sent me hours away to a retina specialist, and he, in turn, saw nothing to bother him, and I was right back where I started.

The last opthamologist I saw--a few months ago--said my autoimmune thyroid disease probably changed the shape of my eyeballs, and they are weirdly shaped now, and worked very hard to get a prescription that worked for me.

Nope.  NOt working.  My eyes go blurry within minutes of reading or driving (I"m farsighted, so the latter is a weird one) whether I wear my glasses or do not.  And I can see better far away without my glasses.

I wore a very weak prescription as a kid until I graduated from high school, and didn't wear any (and had better than 20-20 vision) all those years until this happened (at age 39).

It's affecting my job (English teacher) as well as my enjoyment in life immensely.

I have wondered if it's Sjogren's Syndrome (often shows up with Hashi's hypothyroid, which I have), but I wanted to ask you people who've lived with FMS what you thought, and what you've experienced.  Why reinvent the wheel if I can get a good starting place from you, right?

Thoughts?  Experiences?

--Kj
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7 years ago  ::  Mar 31, 2008 - 8:40PM #2
bubbysmommy
Posts: 1,119
[COLOR="DarkSlateBlue"]Sweetie, I thought my problem was the Lyrica. Hmmm. Now, I will also have to go looking for answers to be sure.
Love & Hugs
Jodi[/COLOR]
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7 years ago  ::  Mar 31, 2008 - 9:56PM #3
Feinics
Posts: 2,539
yes i have trouble with my eyes they get tired very easily, blurry, when i get tired i see wierd shapes and things..some have has to do with me working on my auric sight but in general i attribute it to the fms!  the most noticable problem is a very strong sensitivity to light and in case anyone else here has a similar problem and wears glasses i mentioned it to my optician and she got my new glasses to have this special thing done to it that reduces glare from lights, including computers etc.. its been a great help and was quite cheap worth the few extra quid
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7 years ago  ::  Apr 01, 2008 - 6:55PM #4
Ithilien
Posts: 1,597
Thanks, you guys.  I have sensitivity, too--light and noise.  Hey, good thing I work with loud teenagers under fluorescent lighting.  :)

Good luck to you all!

--Kj
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7 years ago  ::  Apr 02, 2008 - 5:27AM #5
A_Lite_Touch
Posts: 2
I never thought about the Fibro doing it. I get Migraines which make them sensative to light, However thinking back I have for years (almost 20) tried to get the Drs to address what I though was a vision problem.
The Optomitrist  says my eyesight problem is miniscule (or used to be) I use bi focals now when my eyes need a boost (like driving at night) My eyes still have the same difficulty as before which seems to be difficulty switching between distances quickly and difficulty focusing when changing light sources and brightnesses.
Lately (about 1 year) I have had problems with blurriness as if allergy in my eyes . (No allergies).

I was diagnosed with Fibro in '93 and had enjoyed the fanaticisim of underinformed and  egotistic  Doctors telling me I was nuts for at least 5 years prior. I even had one Dr tell me I should try a pstchotropic drug because even though he did not know why it worked he was using it and it might get rid of my pain.

When I was diagnosed it was by a Rhuemetologist at the point when they had just acknowledged it was a legit condition. At that time the American Arthuritis assn was the group who dealt with it and they felt it was an auto immune reaction which effected the connective tissue at the joints. We now know there are a wide raneg of problems associated with it including neurological issues which would include eyesight to my understanding.
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7 years ago  ::  Apr 02, 2008 - 8:57AM #6
tammyjwhammy
Posts: 6
i look at it this way... fibro affects EVERYTHING!!!  when i went to the fiberomyalgia and  fatigue center they give you a 26 page questionaire to fill out  before you are seen.... i found out  by filling that out that fibro affects everything!! from blurry vision to athletes feet (from head to toe...lol)
i have recently been healed from myfibromyalgia, something i never thought possible... my story is on my profile
good luck and God bless
any questions... please feel free to e-mail me @ tammyjwhammy@aol.com
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7 years ago  ::  Apr 02, 2008 - 9:34AM #7
Feinics
Posts: 2,539
thats what i liked about acupuncture it treated the body as a whole so all those niggly little symptoms go as well!
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7 years ago  ::  Apr 03, 2008 - 4:33PM #8
karbie
Posts: 3,329
One of the fun things I've found with almost all my medications is a warning they can make me "photosensitive"...something I was always quite good at all on my own! (Now, if they'd like to make me "photogenic"...that would be fine!) When I was 18 I spent Spring Break down in the Cape Coral/Ft. Myers area of Florida, I quickly discovered the ozone was too thin for my freckled flesh....and when we went to Disney World and those nice long lines, by the time we left every inch of me NOT covered with clothing was covered with so many red dots I could have won Miss Prickly Heat Rash hands down--even the little eyelet holes on my SANDALS were dotted. I had a lovely case of sun poisoning and since it had been so extensive, I've had to be careful ever since because I tend to get heat exhaustion easily. The bus ride back to Cape Coral from Orlando was NOT fun, especially since I was still recovering from an appendectomy at the time.
  You will definitely experience eye changes with Sjogren's Syndrome; my older sister has that, plus FMS, lupus, diabetes, Epstein -Barre, Von-Wildebrands, and arthritis in every single joint in her body. Some days she can't talk for long, and she's wearing her glasses a lot instead of her contacts . I have extreme problems with dry mouth, but so far I've tested negative for Sjogren's, lupus, and Zollinger-Ellison, thank God. All the little horribles that don't become family heirlooms until after you have a child of your own.
    Dry eye can affect your vision--absolutely. I used to have a slight tint iin my glasses in grade school because flourescents gave me a green complexion, migraines, and blood-shot eyes. Even with contacts, I needed makeup to look normal. I had people ask me if I was okay all day the first time I came in without makeup on--no one accepted the truth-that what they were seeing WAS my real color.
   If you get into the Fibro Fog stage, your side vision sees the room as being hazy. With thyroid trouble, I was always ran a low-grade fever that made my eyes too dry for my contacts. The Lyrica had things a little blurry for about the first 5 days, but once I made it past that...and the head shaking, hands suddenly waving, etc...I've been fine. It's just that with Lyrica, when it says every 12 hours--it MEANS it!  I haven't had blurry vision or the other junk since then, which is really good, because I have had my mobility improve 90% since I've been on it and that has been tremendous for me.
  Good luck....if you are like me, you go insane when you can't see clearly enough to read. Hope this clears up for you soon!
Karen
Speaking of side effects--I think that any researcher who thinks that a drug that "may cause excitability in small children" is okay should be forced to take home three sets of cranky 3 year olds who are taking it--by themselves--with TV but a broken DVD/VHS player--for a rainy weekend. Mine is long past that age, but the side effect I wanted was "May make child drowsy", not "Will make child climb walls"!
"You are letting your opinion be colored by facts again."
'When I want your opinion, I'll give it to you."
these are both from my father.
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7 years ago  ::  Apr 05, 2008 - 9:27AM #9
Ithilien
Posts: 1,597
Karbie writes: "   Good luck....if you are like me, you go insane when you can't see clearly enough to read. Hope this clears up for you soon!"


That's exactly it.  I can see well enough to get by--drive, do daily things---but it's the *reading* inability that's blocking my chi, dammit!  I mean, I'm an *English* teacher!  Some days, by afternoon, I can no longer read well enough to conduct class so I have to change my lesson plans.  This is *not* cool.

And, of course, the reading-for-pleasure.  My house is basically four walls containing books.  I have books in every room, stacked everywhere.  There are book in the bathroom.  Books in teh garage.

And I usually can only read a few minutes--and this is *with* my newest glasses (which I got in October) and my Systane eyedrops handy--without everything getting so blurry that I have to stop or else go through massive amounts of straining just to continue.

Some books are easier than others--I'm noticing that the whiter the page (thus, the more contrast)--the *harder* it is.  In other words, most of my textbooks at school, alas.   The less contrast, the less "ghostimaging" I notice, I think.

It's seriously contributing to my bad mood.  Reading has always been my number one fun thing to do, and I'm going crazy!

--Kj
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7 years ago  ::  Apr 07, 2008 - 9:21PM #10
CindyJ
Posts: 27
My vision changes often.  I get perfect eye exams sometimes and then other times get bad ones.  I was told by an eye doctor that this is normal with many FMS pts.  One time I actually fell asleep during a part of the eye exam from having to concentrate so hard. 

My vision issues are more related to going from close work to distance. 

I haven't had an eye exam in a couple of years and should probably go again soon and see if things have changed.
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