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Switch to Forum Live View Spinal Stenosis, Bulging Disks
7 years ago  ::  Feb 22, 2008 - 10:46AM #11
karbie
Posts: 3,329
Dear Connie and Eileen,
  I'm glad you both found your way here. I can understand them not giving you Demerol; both my mother and sister are violently allergic to it. Kathy could take it for a few years; I haven't had a problem but I avoid it myself now. They get migraines so intense they almost go into a coma for days interspersed with projectile vomiting.  Mother used to take SOMA when it still had vicodin in it, but that was over 25 years ago. I have generic Flexeril for muscle relaxants.
   My main pain relievers are fentyl patches you change every 72 hours. I started out with 1 25g. patch and have been at my current level of 175 for a few years now. They aren't cheap but they do work. I have to move mine more than 72 hours apart because I'm sensitive to adhesive. Just another little cosmic joke.
  I've told my pain doctors before that during a really bad flare I'd remove my skin if I could just to get that much less pressure on the worst spots.  Those are the days when writhing in agony is my exercise for the day--and like you, I don't  know what to do on those days than just stay in bed. At my most perverse, I told my pain specialist if I could just change my sexual orintation so I got off on pain, I could be happy all the time. It's easier to laugh than cry--and it's easier to stop laughing, too.
If there's one thing I wish I'd known about before getting it, it's "fibro fog", which is usually a sign that you are pushing yourself too hard. I tried substituting pain for energy and ended up thinking I was having strokes because my aphasisa kept getting worse while my emotional control and ability to think  weren't good. I figured if I pushed too hard I'd just end up with a few days in bed, not with my brain out to lunch. By the time it was diagnosed, I literally had parts of my brain shutting down--it was horrible.
   I got cellulitis while this was going on, and I couldn't even tell them what drugs I took or how much. Fortunately I had a medical history in the computer with all that information +hospitalizations+ drug allergies that I had made in case there was a time when I wasn't capable of giving that information myself. It's also good when I'm seeing a new doctor and they give you 2 lines when you need 6 on a form--I hand them their own copy and write "see attached"..it's been a big help.
  These cold fronts make everything ache more, I know. But I hope you both find this board the same Godsend I have. Having a place to go where everyone KNOWS how you feel and you can vent with kindred souls has made such a difference in my life...just the relief of not needing to give a medical lecture to people who think if you don't turn plaid you don't have a "real' medical condition, has been HUGE for me.
  You can go on as many boards as you like; there are many warm, caring souls on these forums I'm proud to say are my friends. You can come when ever you need to, and someone will answer you who knows how long and dark a night is when you hurt too much to sleep. Hang in there--and welcome home.
Karen
"You are letting your opinion be colored by facts again."
'When I want your opinion, I'll give it to you."
these are both from my father.
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7 years ago  ::  Feb 25, 2008 - 1:26AM #12
starskyslady2
Posts: 38
[QUOTE=karbie;305729]Dear Connie and Eileen,
  I'm glad you both found your way here. I can understand them not giving you Demerol; both my mother and sister are violently allergic to it. Kathy could take it for a few years; I haven't had a problem but I avoid it myself now. They get migraines so intense they almost go into a coma for days interspersed with projectile vomiting.  Mother used to take SOMA when it still had vicodin in it, but that was over 25 years ago. I have generic Flexeril for muscle relaxants.
   My main pain relievers are fentyl patches you change every 72 hours. I started out with 1 25g. patch and have been at my current level of 175 for a few years now. They aren't cheap but they do work. I have to move mine more than 72 hours apart because I'm sensitive to adhesive. Just another little cosmic joke.
  I've told my pain doctors before that during a really bad flare I'd remove my skin if I could just to get that much less pressure on the worst spots.  Those are the days when writhing in agony is my exercise for the day--and like you, I don't  know what to do on those days than just stay in bed. At my most perverse, I told my pain specialist if I could just change my sexual orintation so I got off on pain, I could be happy all the time. It's easier to laugh than cry--and it's easier to stop laughing, too.
If there's one thing I wish I'd known about before getting it, it's "fibro fog", which is usually a sign that you are pushing yourself too hard. I tried substituting pain for energy and ended up thinking I was having strokes because my aphasisa kept getting worse while my emotional control and ability to think  weren't good. I figured if I pushed too hard I'd just end up with a few days in bed, not with my brain out to lunch. By the time it was diagnosed, I literally had parts of my brain shutting down--it was horrible.
   I got cellulitis while this was going on, and I couldn't even tell them what drugs I took or how much. Fortunately I had a medical history in the computer with all that information +hospitalizations+ drug allergies that I had made in case there was a time when I wasn't capable of giving that information myself. It's also good when I'm seeing a new doctor and they give you 2 lines when you need 6 on a form--I hand them their own copy and write "see attached"..it's been a big help.
  These cold fronts make everything ache more, I know. But I hope you both find this board the same Godsend I have. Having a place to go where everyone KNOWS how you feel and you can vent with kindred souls has made such a difference in my life...just the relief of not needing to give a medical lecture to people who think if you don't turn plaid you don't have a "real' medical condition, has been HUGE for me.
  You can go on as many boards as you like; there are many warm, caring souls on these forums I'm proud to say are my friends. You can come when ever you need to, and someone will answer you who knows how long and dark a night is when you hurt too much to sleep. Hang in there--and welcome home.
Karen[/QUOTE]


Awwww,
thanks for your awesome reply Karen...I was begining to wonder if I was doing something wrong here on my puter. Been a long time since I've been able to sit in the puter chair and and kinda' surf around,. Ya made me smile about the "turning plad" thing...lol good one.  Well, I hope I'm finally retrieving some of the right mail in the right order here...I noticed earlier I think I replied to someones post from like looooooooooong ago....hum, could this be a fibro fog??  Don't think I can blame this one on the that..it's me who keeps having brain farts with anything regarding my computer.  I used to write and do alot on this thing.  Yeah it's a newer computer but I seem to have totally forgotten how to find my way around...everyone here is just so great.  I do question though even though I know your not suppose to question but why all the suffering??  I need to go to bed because I have to get up at 6;30 with the kids to get them ready for school and man,,,I'm dreading it...my legs and back are barking bigtime.  I can't imagine trying to fall asleep only to have the freggin' alarm clock start screaming just as I get into it. errrrrrrrrrrrrrrrrrrrrrrrrr.  Thanks again for replying gf.

Take care,
Eileen
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